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MS is often misunderstood, but by shining a spotlight on the experiences of people living with MS we can help to change that. MS Awareness Week runs each year, this year it’s from 19 until 25 April and is your chance to stand up and speak out. We’d love your help to make this year bigger and better than ever!

For many people talking about MS can be challenging – whether you’re speaking to a friend after being newly diagnosed, or finding the right words to describe symptoms to an employer. We know many of you help people open up about their MS through your volunteering role and will be familiar with this issue.

What we’re doing

We want to support people to talk about their MS as we know many are reluctant to for a variety of reasons. So to help us do this, we need to know more about the challenges and barriers to speaking up.

We’ll be using the hashtag #LetsTalkMS across our social media this year and we’ll create resources which will help people to feel confident talking about their MS. We'll also be sharing stories of how others found their voice and, with your help, creating lots of buzz on social media and in the press.

Visit our MS Week webpage by clicking here, where you'll soon be able to take part in and share our #LetsTalkMS survey. We want to hear how comfortable you are talking about the condition and what the barriers are. The results will be shared publicly to get a conversation going and help others to better understand some of the challenges MS presents.

Over the coming weeks we'll be updating this webpage with more resources, blogs and stories – so keep checking in! We will also let you know how you can get your local community involved in our next email.

Get in touch

In the meantime, if you want to hear more about #LetsTalkMS or would like to sign up to share your story, get in touch with our press team at [email protected]