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My Neuro Survey 2021

The impact of the COVID-19 pandemic has put extra strain on overstretched health and social care services and made it even harder to access the right treatment and support. It’s therefore more important than ever that the voices of people with neurological conditions are heard.

The Neurological Alliance

The MS Society is proud to be part of the network of over 70 organisations who form The Neurological Alliance. Together, we campaign to change the huge levels of variation in access and experience of care. We want everyone affected by neurological conditions (that’s one in every six people) to have access to high quality, joined-up care and support to meet their needs - whoever they are, whenever they need it and wherever they live.

My Neuro Survey

Every two years. The Neurological Alliance runs ‘My Neuro Survey’ to give an accurate picture of people’s experience of neurological care, treatment and support across the country. It’s the largest survey of people with neurological conditions in the UK. Results from previous surveys have been used to improve services in hospitals, develop new specialist centres, and spark debate in Parliament.

The 2021 survey is run in partnership with the Neurological Alliances of Scotland and Wales and the Northern Ireland Neurological Charities Alliance (niNCA). So, anyone with a neurological condition (or awaiting diagnosis) in England, Scotland, Wales or Northern Ireland can take part.

The survey asks questions about whether you’re getting the treatment and support you need, including questions about:

  • Diagnosis

  • Treatment and therapy

  • Access to specialists

  • Social care

  • Employment and financial support

  • Support for mental wellbeing

  • The impacts of COVID-19 on treatment and care

How do I get involved?

You can complete the survey here.

Or you can call the survey partners (Quality Health) on 0800 783 1775 (Freephone) to:

  • ask for a paper copy (or large print or Easy Read version) to be sent to your address

  • hear and complete the survey over the phone in any language

The survey takes around 20 minutes to complete and is completely anonymous and secure. By taking part you’ll help to put an end to poor care and improve treatment, services and care for people with neurological conditions.

Anyone in the UK with a neurological condition can take part, so please share the URL with your network and on social media (#MyNeuroSurvey).

The more responses we receive, the more effective we can be in campaigning. By sharing your experiences, you’ll help to gather the evidence to make the case for change.

The survey closes on 14 January 2022. In April 2022, The Neurological Alliance will launch a report outlining the results and recommendations for change, and share it with the media, government and healthcare bodies – to improve care and campaign for better services for people with neurological conditions.

You can find more information here.