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'My MS My Needs' Survey, and 'Friends and Family' Survey - Resources

The results of this survey (run every three years) help us start conversations with national and local decision makers about the things that matter to people with MS. Please spread the word and share the link through your networks. The resources below should help with this:

Printable A4 poster and A5 postcard

These can be displayed at events, They include language help and scannable QR codes for the surveys. You can find these here.

Suggested social media posts:

My MS My Needs:

MS Society’s #MyMSMyNeeds survey has launched! 

It's the largest survey of people living with MS in the UK. Your experiences will help shape their work for the next few years:

Friends and Family: 

With the #MyMSMyNeeds survey, the MS Society want to hear experiences from people living with MS to help shape their work.  

But they'd like to hear from the whole MS community! If you're a friend, family member or carer of someone with MS - here's the survey for you:

Suggested group newsletter copy:

My MS My Needs is the largest survey of people with MS in the UK. Run every three years, alongside our Friends and Family Survey, the survey helps us understand the priorities of the wider MS community.

The results are invaluable for our campaigning work. They guide our organisational strategy and priorities. And they’ve been key to opening up conversations with decision makers in national government and local services about the things that matter to people with MS.

  • If you have MS, complete our My MS My Needs survey online on the UK MS Register page (

  • If you have family or friends with MS, complete our Friends and Family survey online on our Alchemer page (