Help shape clearer information about hospice care

Share your experience to help shape clearer, more accessible information about hospice care for people affected by progressive neurological conditions.

Finding clear, accessible information can make a real difference when you’re living with a progressive neurological condition (PNC), or supporting someone who is. At the moment, it’s not always easy to understand what hospice care offers, how it can help at different stages, or how it fits alongside other support.

Hospice UK is working to improve this by creating a new, easy-to-understand resource about hospice care for people affected by PNCs.

To make sure it reflects what matters most, they’re asking for input from people with lived experience, including volunteers, people living with a PNC, carers, and family members.

The survey is short and focuses on your experience of finding information: what’s worked well, what’s been missing, and what would have made things clearer.

Take part by filling in the survey: Understanding hospices for those impacted by progressive neurological conditions

Closing date: Friday 5 June 2026

By sharing your views, you’ll help create clearer, more useful information for people affected by MS and other neurological conditions.