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Highlights of our 2025 volunteer survey

Thanks to everyone who took the time to complete our volunteer survey last month. We had over 70 responses. We'll carry out a detailed analysis to share with you, but we wanted you to have the headline figures as soon as possible.

77% of those who responded feel 'fairly' or 'very' satisfied. We know there’s a lot more to do to get it right for everyone, and we certainly don’t want anyone feeling unsatisfied with their role with us. So we’ll be taking the time to address issues that aren’t working.

MS Letters: the final year of our Stop MS Appeal

It’s the final year of our Stop MS Appeal, and we’re just £1.5 million away from our target of raising £100 million towards funding the vital research needed to slow or stop MS progression for everyone.




Thanks to research undertaken to date, we now have around 20 disease modifying therapies (DMTs). But these don’t work for everyone, leaving many people facing an uncertain future. It’s vital we continue to fund groundbreaking research to find treatments that slow or stop MS progression for everyone.

Upcoming face to face fundraising campaign

As mentioned in the October newsletter, we’re currently preparing for the launch of our next face to face fundraising campaign, which is due to begin in late November or early December.





Paid, professional fundraisers based around the UK will fundraise on our behalf. This is a fantastic opportunity to connect with new donors and raise awareness of MS. And it’ll showcase our incredible work – including our local groups who support people affected by MS in communities across the UK.

Accessing videos hosted by Vimeo

Vimeo's a video platform where we host some of our videos. From September 2025, Vimeo requires age verification if you’re logged in.

If you’re not logged in, you can watch our videos without verification. If you’re logged in and you don’t wish to complete age verification, simply log out of Vimeo to watch our videos.

If you wish to view the video while logged in, you’ll be prompted to verify your age. Select one of the following options to complete the process.

What’s happening with Project Mead and MS Help

Project Mead is our services transformation project. The changes we’re making to improve our services for people who need us will launch in spring next year as MS Help.





Give a Little contactless devices recording

In July, we announced that our new supplier of contactless devices is Give A Little.






Thanks to those who joined us for an information session in September. The Head of Marketing and Communications at Give A Little talked through the devices available and how it all works. And Annabel, our Policy and Performance Manager, explained the next steps for rolling out cashless giving with Give A Little.

Play the MS Society Christmas Raffle

As one of our incredible volunteers, you already do so much to support the MS community. Thank you.

You can also make a difference while having the chance to win an amazing £10,000. What would you spend it on?


By taking part in our raffle, you’ll help to fund groundbreaking research and vital support for the 150,000 people living with MS in the UK. Every £1 ticket you buy helps us get closer to stopping MS whilst also supporting families, carers, researchers, campaigners and, of course, fellow volunteers.

Become an ‘Early Adopter’ of Assemble

As announced in the last Volunteer Newsletter, we’ll be launching our brand-new volunteer management system, Assemble, from January 2026 onwards.

Important: preparing for the data freeze

As mentioned in last month’s newsletter, we’re getting ready to switch on our new data platform, Sage.

To migrate to the new platform, we’ll need to freeze our organisation’s current database from Wednesday 8 October. The data freeze is anticipated to last around three weeks.

Last week, we emailed Group Coordinators, Communications Volunteers, Admin Volunteers and Activities Organisers to let them know what to expect.

Join our #FightForNeuro campaign in Northern Ireland

Right now, people with MS in Northern Ireland are being failed. Join us in our fight for neurology services!






FightForNeuro campaign

FightForNeuro is a campaign organised by the Northern Ireland Neurological Conditions Alliance (niNCA). niNCA is a membership of charities, including MS Society Northern Ireland, that works to raise awareness, influence health delivery and improve care for people living with a neurological condition.