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MS Support and information giving

We want everyone affected by MS to have easy access to the latest evidence based information.

If your group handles money and provides services and activities, we expect you to ensure that information about MS and MS Society services and activities is available to everyone in your community.

  1. Find out more about Giving information

Enhancing your information giving

Lead Support Volunteer or Support Volunteer receive Support Volunteer Training and ongoing support to enhance your group’s information giving.

See Group Handbook D1: Offering MS Support

This enables your MS Support service to:

  • Ask the right questions to understand what people want to know, or need support with.

  • Have expert knowledge of our resources, and support people to access those that are relevant to their situation.

  • Receive all new and revised MS Society publications as they are released.

  • Give relevant and up to date information.

  • Know where people can get information and support locally about other specialist services.

  • Help people pull everything together to make informed choices that meet their needs, in ways that suit them.

  • Keep us informed about the types of enquiries your group receives to help us improve services and resources.

Information resources

MS Society publications

We have a wide range of award-winning publications and factsheets to support people affected by MS to live life to the fullest and engage in shared decision making about their health and wellbeing.

We update our key publications list monthly in PDF and Word formats. You should use the PDF version as a handout at meetings and events. The Word version is to enable you to copy and paste information into a newsletter or other communication.

  1. Download our Key publications list

Ordering publications

Our information resources are available to order from the Online Shop. They are free of charge to your group, but please keep in mind our production costs and regular update schedule when placing orders.

  1. Find out more about using our Online Shop

Supporter Care Team

You can ask the Supporter Care Team to post individual copies of publications to people on your group's behalf.

  1. Get contact details for our Supporter Care Team

Handling personal information

We don’t expect Lead/Support Volunteers to hold personal information about people using your MS Support service, or make case notes about enquiries you have taken, and you must not do so.

When you do handle personal information, we expect you to be discreet at all times, and maintain confidentiality where necessary.

You must ask permission from a person before sharing information about them with another Lead/Support Volunteer, a member of staff, an MS professional, or an external organisation. You must only use the information they share for the purpose/s they have agreed to.

  1. See our rules for Handling data

Safeguarding and data protection

Safeguarding concerns are one of the few exceptions to this rule. You must report all abuse or suspected abuse to our Safeguarding Responders Group, even if you have not been able to obtain permission.

  1. See our guidance on recognising and responding to Safeguarding concerns

Need support?

You support people affected by MS, but who supports you?

We do - with practical, emotional and peer support options, access to our specialist signposting database, regular knowledge updates and key MS Support resources.

  1. Find out how we Support your team

MS Helpline

Our MS Helpline offers emotional support and information to anyone affected by MS in the UK. You can ask them for help with individual enquiries and share MS Helpline contact details with anyone you think could benefit.

MS Helpline
Tel: 0808 800 8000
Email: helpline@mssociety.org.uk

Back to Your MS Support service

Topic: 
Offering support