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Board and Council recruitment

Are you seeking a new volunteering challenge? Or do you know somebody who is?

We’re looking for people with marketing and fundraising expertise to join our Board of Trustees. Trustees play a critical role in setting our strategic direction, supporting and challenging the Executive Group, and setting and upholding our values and culture.

Working to increase our diversity

Would you like the opportunity to feed back your thoughts on our draft Equity, Equality, Diversity and Inclusion (EEDI) Strategy?

We have ambitious plans to increase our diversity and make the MS Society a more inclusive place to work, to volunteer and to be involved. As part of this goal, we’ve created a draft EEDI Strategy that outlines where we are now and where we want to get to.

On Monday 14 June, from 5-6.30pm, we’ll be hosting a conversation where you can have a say in what you think of the plans as we continue to develop them.

Volunteers’ Week round up

We’ve been celebrating Volunteers’ Week by posting on our website and social media about what you do, how you do it, the impact you’re making and the support you give to people affected by MS.

Here’s a round-up of all the great messages and stories we’ve had the pleasure of sharing so far this week.

Stories

Each day this week we’ve been promoting the stories of different volunteers talking about what led them to volunteer, the challenges they faced, and what helping others has also given to them.

Carers Week

Next week, starting on 7 June, is Carers Week! Carers Week was established by Carers UK more than 25 years ago. It’s an annual campaign to raise awareness of caring, highlight the challenges unpaid carers face and recognise the contribution they make to families and communities throughout the UK.

Carers across the UK are continuing to face new challenges as a result of the COVID-19 pandemic. And many people are taking on more caring responsibilities for their relatives and friends who are disabled, ill or older and who need support.

For you - launching soon!

We’re excited to announce For you – our new online and offline experience for the MS community – will be launching very soon!

Over the coming months you’ll be hearing more about what For you has in store, and how you can sign up.

By joining For you, you’ll be able to enjoy additional online benefits and an enhanced experience on our website for free.

When you sign up, you’ll be invited to create a personal space online where you can feel at home. From your space you’ll be able to:

Read our special issue of Teamspirit

We had to pause Teamspirit at the start of the pandemic, and it will remain on hold until we’ve completed an upcoming communications review. But we recently published a special issue which was sent out in print. If you had previously asked to be removed from our print distribution list you won’t have received it, so we’re pleased to share it with you online now.

The issue includes:

  • Organisational charts for the four teams within Community Networks.

  • A reminder of our commitment to listen to volunteers and improve the support we offer.

Keeping you safe online

In recent times, we all see and hear about more and more cyber attacks. There are many different types of phishing emails and scams on the internet nowadays. And, as cyber criminals become more sophisticated, it’s becoming harder and harder to identify scams. It’s important we’re aware of potential risks, what to look out for and how to protect our accounts.

World MS Day

World MS Day is on Sunday 30 May, and this year the theme is ‘connections’. It’s all about building community connection, self-connection and connections to quality care. The MS International Federation (MSIF), of which we’re a member, has developed this campaign to challenge social barriers that leave people affected by MS feeling lonely and socially isolated.

‘Not Alone’

The campaign tagline is ‘Not Alone’ and the campaign hashtag is #MSConnections. And we encourage you to get involved on your social media channels using this tag.

MS-STAT2 trial closes in on recruitment goal

Our MS-STAT2 trial is investigating whether simvastatin can slow disability progression when taken over a three-year period. They’re measuring progression using the Expanded Disability Status Scale, which assesses changes in walking and other MS symptoms.