Mark your diaries. MS Awareness Week 2025 is running from 28 April – 4 May. And this year's theme is 'MS conversations'.
We’re teaming up with our friends at MS Together, MS Trust, MS-UK, Neuro Therapy Network, Overcoming MS, Shift.ms and Talks with MS to share one unified message — talking about MS can be difficult, but it doesn’t have to be.
MS conversations are happening all the time. Whether it’s talking to a family member about their diagnosis or asking an employer for support. Finding the right words might be hard, but opening up can be empowering.
Submitted by Joanna Grogan-A... on Thu, 2025-02-13 13:33
It’s not too late to book a place at a roadshow and spend time with your fellow volunteers.
The volunteer and community roadshows are now in full swing. The first event was held in Harlow on 6 February where 25 people joined us to share their views about our services and support.
Volunteers told us they really enjoyed exchanging ideas and experiences with each other. They also had the opportunity to have their say about the support that’s most important to them.
Submitted by Joanna Grogan-A... on Thu, 2025-02-13 13:23
We’re continuing at pace to get everything ready for the launch of Assemble. The launch of Assemble is part of a complex data project for the organisation. The project team continues to meet to decide on organisational readiness for the launch of all the related systems. As soon as we’re able to share a more definitive update with the timeline for launch, we’ll be in touch by email.
Once Assemble goes live, there’ll be a range of support resources for you to use to get to know Assemble. We’ll keep this article updated with links as resources become available.
We know it’s not always practical to visit a solicitor to make your will. Through our partner, Octopus Legacy, you can write your will quickly and securely from the comfort of your own home. Whether it's your first time writing a will, or you want to update one, this is a simple way to get it sorted.
As an MS Society volunteer, you can use this service for free.
'We Are Undefeatable' is a collective movement supporting people with a range of long-term health conditions. The campaign is developed by 15 leading health and social care charities and backed by expertise, insight and significant National Lottery funding from Sport England.
The movement aims to support and encourage people to find ways of being active that work for them, and their health condition.
It’s been an exciting start to the year with the opening of another new MS Society shop — this time in Sale, Manchester.
Located on Norris Road, the shop's based in the heart of the Sale community and will offer a fun, accessible and friendly shopping experience.
The shop in Sale follows the opening of the Altrincham shop back in May 2024. We want these new shops to become local hubs for the MS community just like our existing volunteer-run shops.
Submitted by Joanna Grogan-A... on Thu, 2025-01-16 17:08
Join us at an event this February or March to tell us how we can improve our support services in your community.
What is Project Mead?
As you know, through the dedication of our volunteers, we’ve been providing services to support people affected by MS since 1953. Today, we have 230 groups providing support to the MS community right across the UK. So it’s important to us that we always listen to volunteers and our community to make sure we’re providing the right support and the best possible services to people who need us.
Submitted by Joanna Grogan-A... on Thu, 2025-01-16 15:13
Avoiding page closures
We’ve heard from some of our groups that their Facebook pages are being suspended due to ‘impersonation’. We believe this is due to pages using the same logo as the MS Society official Facebook page. We’re contacting Facebook for further guidance on this issue.
We realise you probably don’t mark Data Protection Day in your calendar, so it slips away unnoticed. But it’s a yearly reminder of the importance of keeping data safe and secure. Of only using it fairly and in the way we said we would. And of letting people know where they can find out more, or change the way we use their data.