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Community Connections – volunteers needed

We’re delighted to announce that we've been successful in a funding application for a 'test and learn' project in Wales and the South West of England, Community Connections.

Funded by Wales and West Utilities, Community Connections is launching this month and will run until March 2026.

Community Connections aims to:

  • Connect people with, and affected by, MS across Wales and the South West of England (Cornwall, Devon, Somerset, Bristol, Gloucestershire, and Wiltshire) with services, activities and resources to enable them to live well with MS.

Coffee & Chats are back for December











Our quarterly Coffee & Chat sessions are your opportunity to connect with other volunteers in our local groups across the UK. And to hear from some colleagues from across the organisation. We hold the sessions on Zoom and have scheduled them at three different times, in the hope that one of the options will work for you.

All group volunteers are welcome to attend, so please pass this invitation on to anyone who may have missed it.

Our next nationwide Coffee & Chats will be held on:

Move to Universal Credit from 'legacy benefits'

If you still receive a legacy benefit, you’ll get a letter from the Department for Work and Pensions (DWP) in the next few months asking you to move to Universal Credit.





Legacy benefits are:

Face-to-face fundraising update

It's been wonderful to work more closely with our volunteers since restarting our face-to-face fundraising campaign in May. Thanks to everyone who's fed back, asked questions or even interacted with our fundraisers! It's been so valuable in making this campaign the best it can be.


Giving in other ways to stop MS

Whether you’re shopping online, or having a clear-out at home, there are lots of ways to fundraise to stop MS — and some of them won't cost you a penny.





Donating

There’s lots of ways to turn your recycling into donations through our fundraising partners.

  • Donate your old car through Charity Car or Give a Car. They’ll either sell or scrap your car and take a small admin fee.

My time on the Assemble Volunteer User Panel

Susannah Robinson holds multiple volunteering roles for the MS Society, including Group Coordinator of our Gwynedd/Ynys Mon Group and Chair of Cymru Council.

She tells us about her time on the Assemble Volunteer User Panel, and shares some tips on what you can do to prepare for the launch of our new volunteer management system.

Digesting the facts about MS

Have you ever wondered how to explain MS to children? We started to realise, from listening at ‘Newly Diagnosed’ events, how daunting talking about MS at home can be for both parents and children. There was a real need for us to support our community by helping them explain MS to children in an age-appropriate, fun and educational way.

A star-studded turnout for SMS Battles

On Thursday 26 September, celebrities and guests gathered for a spectacular evening at Illuminate, at the Science Museum, to raise vital funds for people living with MS.

Guests enjoyed a star-studded interactive quiz, along with a three-course dinner and a special silent auction, featuring exclusive designer items from Sir Rod Stewart’s wardrobe.

So far, the event has raised an incredible £220,000 (and counting) for the Stop MS Appeal, which aims to raise £100 million for MS research.

Sharing sensitive personal information

We’re all aware (and often reminded) of the importance of keeping everyone’s data safe. But we sometimes forget that this goes beyond the kind of personal data - involved in fraud and identity theft - that we’re always keen to protect.




In fact, according to data protection regulations, what’s known as ‘sensitive information’ about someone needs even more protection than their personal data.

Sensitive information includes details about someone’s:

Welcome to Assemble

Assemble, our new volunteer management system (VMS), is launching next year. It will simplify processes, give you control of your personal data and provide a central source of information. It will also replace the Portal and Volunteer Website, both of which have now reached end of life.


This page will have all the latest news and support available to get you started on Assemble, including 'how to' videos and guides. You can access these in the support section below and we'll add more resources as we start using the system.